Seventeen years ago, Diana Rose wrote that in mental health, user involvement was becoming ‘a technology of legitimation’ for reinforcing established powers. Seventeen years later, in examining some of the circuits and processors, Mazanderani and colleagues reveal how complex this ‘technology’ or machinery has become, and is still becoming. As though opening the doors of the machine room, the authors offer us a wealth of important insights and ideas. I’d like to share some thoughts on just a couple of them here.
Emilia Aiello, Lorenzo Melchor, and Eduardo Oliver
Eurobarometer (2014) data on public perceptions of science, research and innovation revealed the Spanish population has high expectations of the role that scientific and technological development can play in improving key public policies (e.g. health and medical care, education and skills, transport and infrastructure). Yet unlike Norway, the UK or France, the Spanish national Parliament does not have any permanent legislative scientific and technological advice mechanism to act as an independent, cross-party, proactive and accessible source to inform debate and the policymaking process. Perhaps surprisingly, Spanish political parties all seem to agree on both the positive role that evidence can play in informing effective policymaking and the need to implement an independent advisory mechanism. This has been evident throughout the multiple public debates surrounding the initiative #CienciaenelParlamento (Science in Parliament), which emerged in January 2018, with the aim of closing the gap between science and society and better engaging scientists and parliamentarians.
How are you doing? You told me how you could not stop binging on COVID-19 news. So, I am sending you something different: “Risk, uncertainty and medical practice: changes in the medical professions following disaster” by Sudeepa Abeysinghe et al. I can see you wince, complaining that a paper written about a nuclear disaster that happened 9 years earlier has nothing to do with what we are undergoing now (note: this piece was written in March-April 2020). Well, I would argue that the paper is quite relevant today because it gives us perspective on how the medical professionals stretched their roles/responsibilities in times of crisis. You told me of your deep respect for these professionals, and I believe this paper will increase your understanding of their challenges and even deepen your appreciation.
Recently I came upon this photo in a post in Twitter. I have seen it before. It’s a powerful image by Sir Luke Fields. The child and doctor at the centre, in the glow of the lamp. The child ill and exhausted. The doctor earnestly observing. Watching. Sitting. Waiting. Thinking. Previously, and again this time, I absorb this painting as a statement on the medical profession. A reminder of the solemness of their work. The gravity of life and death. The role of the family in the background, secondary and in the dark.
But then I was challenged to really look at the image. The Dad wasn’t simply in the background, he was standing in the shadows, he was stoic, he was purposefully and intently studying the doctor for signals. Only after considerable prodding, did I notice Dad’s hand comforting his distraught wife. The Mum collapsed in prayer, or distress, or both. Dad’s hand gently on her shoulder, reassuring her, or maybe channelling his energy into her prayer. Her faith. Their hope.
The COVID-19 pandemic is shining a light on the roles that evidence and expertise can play in policy and practice. Understanding the nature of these debates, and developing tools to help decision-makers navigate them, is the focus of the Evidence & Policy community. In this post, we consider how our reflections on the field’s key insights help us understand the role evidence is playing in the UK’s response to the current pandemic:
This new blog helps make the insights within Evidence & Policy accessible to all. In this opening post, the current Editors reflect on what they feel are some of the key insights about the interplay between evidence and policy:
If the people decide where to go, should experts decide how to get there? In the so-called evidence-based policy (EBP) movement, the general answer is yes. EBP proponents want to strengthen the ties between science and politics.
Accounts of medical professionals performing triage due to the over-burden of healthcare systems during the COVID-19 pandemic are hard to hear. They are a microcosm of dynamics that are occurring globally, where public health authorities and governments are attempting to simultaneously understand and respond to a swiftly moving global pandemic. In this article, the European Centre for Disease Prevention and Control Public Health Emergency team* offer lessons from recent history for decision making during this difficult time.