
Shane Clifton
This blog post is based on the Evidence & Policy article, ‘Disability lived experience and expertise: recognising the expert contributions of people with disability’.
The disability rights movement was founded on the principle of ‘Nothing About Us Without Us’. This idea highlights the importance of including people with disability in decisions that affect them and recognises their expertise in shaping their own lives. While people with disability have too often been subject to controlling and dehumanising systems, as we explore in our recent study, there is now a growing understanding that disabled people should play key roles in designing, producing and leading disability healthcare, policy and research. The knowledge they bring is often called ‘lived experience’.
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