This special issue examines the relationship between disability, evidence, and policy. It considers the extent to which the demand for, production, and use of evidence in policy and practice takes account of disability perspectives. For example, disabled populations, already vulnerable, have been made more so throughout the COVID-19 pandemic, which highlights their disenfranchisement and marginalisation in relevant policy decisions. This outcome has sparked calls to action by disability advocacy groups and coalitions in the Global North and the Global South. These current events and responses provide a window of opportunity to reassess and change some of the entrenched systems that consistently exclude vulnerable groups such as disabled populations.Continue reading
This blog post is the forth in a series of posts linked to the Evidence & Policy special issue (Volume 16, Issue 2) on Opening up evidence-based policy: exploring citizen and service user expertise. Guest Edited by Ellen Stewart, Jennifer Smith-Merry, and Marc Geddes.
Seventeen years ago, Diana Rose wrote that in mental health, user involvement was becoming ‘a technology of legitimation’ for reinforcing established powers. Seventeen years later, in examining some of the circuits and processors, Mazanderani and colleagues reveal how complex this ‘technology’ or machinery has become, and is still becoming. As though opening the doors of the machine room, the authors offer us a wealth of important insights and ideas. I’d like to share some thoughts on just a couple of them here.Continue reading
This blog post is the third in a series of posts linked to the Evidence & Policy special issue (Volume 16, Issue 2) on Opening up evidence-based policy: exploring citizen and service user expertise. Guest Edited by Ellen Stewart, Jennifer Smith-Merry, and Marc Geddes.
I am the co-founder and chief executive officer of Generation Citizen, a non-governmental organization in the United States of America that seeks to empower young people to become engaged and effective citizens, and the author of the 2019 book Generation Citizen: The Power of Youth in Our Politics. At Generation Citizen, we are deeply committed to closing the civic engagement gap. We offer school-based action civics programming, which provides young people with the opportunity to learn how to affect policy change and work together to take action on a local community issue. Thousands of Generation Citizen classes have completed these action projects since our founding over a decade ago, and so I have witnessed firsthand the importance and influence of citizen and service user knowledge– in this case, youth knowledge– in informing policy and school decision-making. When students work together to generate relevant evidence and offer evidence-informed ideas of possible solutions, decision-makers should listen. Sometimes students’ lived experiences can uncover outdated regulations that need updating, or work to better support their most marginalized classmates and their families. Yet, too few decision-makers are listening to youth, especially youth from marginalized backgrounds, and we must do more to facilitate incorporating lived experiences into policy. This is one of the reasons why Generation Citizen has worked to support efforts around the USA to lower the voting age to 16, to create an additional incentive for political leaders to listen to youth.Continue reading
Emilia Aiello, Lorenzo Melchor, and Eduardo Oliver
Eurobarometer (2014) data on public perceptions of science, research and innovation revealed the Spanish population has high expectations of the role that scientific and technological development can play in improving key public policies (e.g. health and medical care, education and skills, transport and infrastructure). Yet unlike Norway, the UK or France, the Spanish national Parliament does not have any permanent legislative scientific and technological advice mechanism to act as an independent, cross-party, proactive and accessible source to inform debate and the policymaking process. Perhaps surprisingly, Spanish political parties all seem to agree on both the positive role that evidence can play in informing effective policymaking and the need to implement an independent advisory mechanism. This has been evident throughout the multiple public debates surrounding the initiative #CienciaenelParlamento (Science in Parliament), which emerged in January 2018, with the aim of closing the gap between science and society and better engaging scientists and parliamentarians.Continue reading