Special Issues

Four questions relating to creativity and co-production

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Joe Langley, Nicola Kayes, Ian Gwilt, Erna Snelgrove-Clarke, Sarah Smith and Claire Craig

Reflections arising from an Evidence & Policy Special Issue exploring the role and value of Creative Practices in Co-production. This blog post is based on the Editorial to the Special Issue, ‘Exploring the value and role of creative practices in research co-production‘.

Our Evidence & Policy Special Issue, exploring the value and role of creativity and co-production in research, highlights four key questions:

  1. What constitutes research? And who decides?
  2. What constitutes legitimate knowledge?
  3. What constitutes creativity and co-production in research?
  4. To what extent are we constrained in the opportunities to undertake ‘creative’ research?
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PODCAST: The many faces of disability

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This podcast is based on the special issue of Evidence & Policy ‘‘The many faces of disability in evidence for policy and practice: embracing complexity’.

Carol Rivas and Ikuko Tomomatsu

In this episode of the Transforming Society Podcast, Jess Miles speaks with Carol Rivas and Ikuko Tomomatsu, two of the guest editors of a special issue of Evidence & Policy ‘The many faces of disability in evidence for policy and practice: embracing complexity’.

They discuss the problems with current representations of disability, recent examples of policy that has failed disabled people and the changes that could be made so people with disabilities can be better supported and allowed to participate in policy making.

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Our common purpose for new policies and laws: biology is the gradient that unifies us

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Cheryl J. Widman and Emily L. Casanova

This blog post is part of a series linked to the Evidence & Policy Special Issue (Volume 17, Issue 2): The many faces of disability in evidence for policy and practice. Guest Edited by Carol Rivas, Ikuko Tomomatsu and David Gough. This post is based on the Special Issue article, ‘A sociological treatment exploring the medical model in relation to the neurodiversity movement with reference to policy and practice‘.

A couple of years ago my (Widman’s) son – who is autistic – was going to Sweden to visit family. My nephew, who is deaf, rejected getting together with my son because, after all, my son is not fluent in sign language. My nephew felt that he and my son would not have much in common nor a way to communicate – although as young kids, they were close and found a way to communicate anyway. This caused me to think about what has been going on within the disability community, or more correctly, ‘communities’, and how it got to be so siloed.

Nowhere is disability more dichotomised than within the autistic community. We have folks who celebrate neurodiversity while others eschew it. Some insist on identity-first language while others insist upon person-first. There are those who are hoping for a cure (medical model) while others embrace their autism (cultural model). Autistic culture has become less unifying than factional. If we can’t agree on how to refer to ourselves (‘autistic’ or ‘with autism’), how can we agree on anything else? The feuding is often caustic.

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The absence of culturally appropriate evidence can produce or exacerbate inequities

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Rayanne de Sales Lima, Andréa Borghi Moreira Jacinto and Rodrigo Arthuso Arantes Faria

This blog post is part of a series linked to the Evidence & Policy Special Issue (Volume 17, Issue 2): The many faces of disability in evidence for policy and practice. Guest Edited by Carol Rivas, Ikuko Tomomatsu and David Gough. This post is based on the Special Issue article, ‘Ignoring evidence, producing inequities: public policies, disability and the case of Kaiowá and Guarani Indigenous children with disabilities in Brazil‘.

The implementation of public policies is a process that is as complex as its formulation, especially when we set out to solve issues in communities whose codes and languages are not shared by policymakers.

For example, Brazil is a country of continental proportions. Its population and socio-political contexts are very diverse. In the 2010 census, 305 indigenous ethnicities were identified, ranging from peoples living under voluntary isolation to groups living in major cities, spread across the 27 Brazilian states. Such diversity engenders a multitude of viewpoints about socially relevant problems, which universal public policies cannot cover without proper adaptations.

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We can make better evidence for social policy by seeing participation differently

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Sally Robinson, kylie valentine and Jan Idle

This blog post is part of a series linked to the Evidence & Policy Special Issue (Volume 17, Issue 2): The many faces of disability in evidence for policy and practice. Guest Edited by Carol Rivas, Ikuko Tomomatsu and David Gough. This post is based on the Special Issue article, ‘Disability and family violence prevention: a case study on participation in evidence making‘.

Early intervention and prevention are ideas so sound in theory that no one would ever disagree with promoting them. Of course it is better to prevent a problem than wait until it occurs before doing something about it! Equally, better protection for women and children who are especially vulnerable to domestic and family violence is also unanimously supported. So why is violence prevention for women and children with disability so hard to achieve? Why, when it has been known for years that the risks of violence for this group are even higher than the (already high) risks for all women and children, and resources have been allocated in multiple strategies and programmes, are they still so likely to experience these harms?

One key explanation is that current ways to gather evidence for policy are too narrow and formal to capture the everyday practices, relationships and decisions that make policy and programmes work. If so, what is the alternative? Our Evidence & Policy article describes a violence prevention project that investigates the strengths and challenges of current efforts, using a case study approach and focusing on the perspectives and priorities of disabled adults and children, and of service providers.

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Why should market stewardship draw on lived experience evidence?

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Ariella Meltzer, Helen Dickinson, Eleanor Malbon and Gemma Carey

This blog post is part of a series linked to the Evidence & Policy Special Issue (Volume 17, Issue 2): The many faces of disability in evidence for policy and practice. Guest Edited by Carol Rivas, Ikuko Tomomatsu and David Gough. This post is based on the Special Issue article, ‘Why is lived experience important for market stewardship? A proposed framework for why and how lived experience should be included in stewarding disability markets‘.

Many countries are moving towards market-based provision of human services, with ‘quasi-markets’ in place. Quasi-markets are different to the conventional markets we are used to within our daily lives, as they require governments to play a role in helping to steer them to success. This is known as ‘market stewardship’. In our Evidence & Policy article, we explore the types of evidence that government uses to make decisions about how quasi-markets should run.

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‘Not wanted here’ – the bleak marginalised reality of how evidence informs employment policy for people with a learning disability in England and Wales

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Kim Dearing

This blog post is part of a series linked to the Evidence & Policy Special Issue (Volume 17, Issue 2): The many faces of disability in evidence for policy and practice. Guest Edited by Carol Rivas, Ikuko Tomomatsu and David Gough. This post is based on the Special Issue article, ‘Exploring a non-universal understanding of waged work and its consequences: sketching out employment activation for people with an intellectual disability‘.

Less than 6% of working aged adults with a learning disability, who receive social care, are in any form of employment – yet studies show that 65% of this population would like to have paid work. Drawing on empirical data, collected predominantly through ethnographic work, the research presented here offers a critical assessment of the mismatch between current policy and available evidence. What this research shows is that the majority of people within this demographic are underserved or excluded from targeted work preparation support in England and Wales. As a consequence, such dismal employment rates are highly unlikely to increase, regardless of government rhetoric.

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Is equality worth measuring?

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Mark Priestley and Stefanos Grammenos

This blog post is part of a series linked to the Evidence & Policy Special Issue (Volume 17, Issue 2): The many faces of disability in evidence for policy and practice. Guest Edited by Carol Rivas, Ikuko Tomomatsu and David Gough. This post is based on the Special Issue article, ‘How useful are equality indicators? The expressive function of ‘stat imperfecta’ in disability rights advocacy‘.

Measuring equality can be difficult, especially when there is a lack of suitable data available, but it makes a difference. If a thing is worth measuring then it is worth measuring well – but even approximate indications of inequality can be useful in drawing public attention to injustices, making marginalised groups more visible and challenging policy assumptions. In a newly published article in Evidence & Policy, we argue that public investments in measuring inequalities have a social value that can’t be measured by technical perfection alone. Imperfect statistics sometimes have strong policy effects!

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Listen to people with disabilities when gathering evidence for policy

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Carol Rivas

This blog post is part of a series linked to the Evidence & Policy Special Issue (Volume 17, Issue 2): The many faces of disability in evidence for policy and practice. Guest Edited by Carol Rivas, Ikuko Tomomatsu and David Gough. This post is based on the Special Issue Editorial, ‘The many faces of disability in evidence for policy and practice: embracing complexity’.

‘Everyone’s a patient’ is a refrain occasionally heard from professional health policy actors dismissive of health service user evidence; they argue that their own lived experience of a visit to the doctor’s gives them sufficient authority.  The fallacy of this is suggested by an eminent psychiatrist’s astonishment at his treatment when hospitalised with a complex leg fracture. A fleeting association with primary care does not equate with the expertise developed by those with conditions with no quick fix – chronic conditions and disabilities. The much-discussed PACE trial shows how political tensions can arise from a disconnect between researchers who make flawed assumptions and those they seek to help. 

So how can we ensure the ‘technical precision and expressive function’ of evidence meet the diverse needs, theoretical and ideological assumptions and priorities of the range of policy actors? How can we prevent procedural values-based decisions driven by political contingencies, drawing selectively on evidence, or the lack of representation or partial representation of disability diversity within evidence and policy?

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Opening the doors of the Machine Room

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This blog post is the forth in a series of posts linked to the Evidence & Policy special issue (Volume 16, Issue 2) on Opening up evidence-based policy: exploring citizen and service user expertise. Guest Edited by Ellen Stewart, Jennifer Smith-Merry, and Marc Geddes.

Sarah Carr

Seventeen years ago, Diana Rose wrote that in mental health, user involvement was becoming ‘a technology of legitimation’[1] for reinforcing established powers. Seventeen years later, in examining some of the circuits and processors, Mazanderani and colleagues reveal how complex this ‘technology’ or machinery has become, and is still becoming. As though opening the doors of the machine room, the authors offer us a wealth of important insights and ideas. I’d like to share some thoughts on just a couple of them here.

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